The University Hospital Vall d'Hebron is highly
specialised in rare diseases at regional, national and
international level with its incorporation as a full member of 20
of the 24 European Reference Networks (ERN). The scientific
coordination of the ERN-EuroBloodNet, www.eurobloodnet.eu , the ERN
dedicated to Rare Haematological Diseases (RHD), is led by Dr Mañú
Pereira, Head of the Rare Anaemia Disorders Research Laboratory
within the “CANCER Y ENFERMEDADES HEMATOLOGICAS INFANTILES” group
at VHIR. The research strategy of our research laboratory focuses
on the development and validation of innovative methodological
approaches for better characterisation of patients affected by rare
anaemia disorders according to their individual features to enable
personalised risk profiles and personalised medicine. Within the
ERN-EuroBloodNet and in line with the strategy at European level,
the team is leading several projects on European patient registries
for rare haematological diseases, namely, the European Patients
Registries on Rare Haematological Diseases, ENROL , and on Rare




Anaemia Disorders, RADeep , aiming at avoiding fragmentation of
data by promoting standards interoperability between patient
registries. In this context, we are looking for a highly motivated,
self-driven and committed professional who will support our group
in database management, databases interoperability and IT related
tasks. Education and qualifications: Required: University degree in
area of Engineer or Computer Science (e.g. IT Engineer, Computer
Science), or University degree in Sciences English (B2). We are
working at European level and have frequent meetings in English
Desired: Master’s degree in a field related to the responsibilities
of this job position (e.g. Bioinformatics, Statistics) Experience
and knowledge: Required: Knowledge of data architecture Knowledge
on computer systems (to be able to lead discussions with different
IT teams, to propose improvements to the platform) Knowledge o

📌 Data Engineer (Cataluña)
🏢 VHIR
📍 Cataluña