The University Hospital Vall d'Hebron is highly
specialised in rare diseases at regional, national, and
international levels, with its incorporation as a full member of 20
of the 24 European Reference Networks (ERNs). The scientific
direction of ERN-EuroBloodNet ( www.eurobloodnet.eu ), the ERN
dedicated to Rare Haematological Diseases (RHD), is led by Dr Mañú
Pereira, Head of the Rare Anemia Disorders Research Laboratory
within the Cancer y Enfermedades Hematológicas Infantiles group.
Within ERN-EuroBloodNet, and in alignment with its strategic
objectives, the team leads several European-level initiatives in
rare haematological diseases and actively contributes to ERDERA
(European Rare Disease Research Alliance) , the Horison Europe
partnership aiming to align and strengthen rare disease research
across Europe. Through ERDERA, the group contributes to the
integration of clinical expertise, research infrastructures, and
data-driven approaches to improve diagnosis, treatment, and
outcomes for patients with rare diseases. The Rare Anaemia
Disorders European Epidemiological Platform (RADeep) is an
initiative endorsed by ERN-EuroBloodNet under the framework of the
European Blood Disorders Platform (ENROL), the ERN-EuroBloodNet
umbrella platform officially endorsed by the European Hematology
Association (EHA) for European patient registries in rare
haematological diseases. RADeep supports the prospective and
longitudinal standardised collection of data from patients affected
by rare anaemia disorders (RADs) at the European level, maximising
public benefit by avoiding data fragmentation and promoting
interoperability standards for patient registries. Its main
objective is to enable epidemiological surveillance and disease
burden assessment of RADs in the European Union, while fostering
data-driven research using real-world data (RWD). In this context,
we are looking for a dedicated and detail-oriented Senior
Scientific Coordinator to join our team. This position combines