The University Hospital Vall d'Hebron is highly
specialized in rare diseases. The scientific direction of the
European Reference Network ERN-EuroBloodNet, www.eurobloodnet.eu ,
dedicated to Rare Hematological Diseases (RHD), is led by Dr Mar
Mañú Pereira, head of the Rare Anemia Disorders research lab at the
Vall d’Hebron Research Institute. In line with the Health data
strategy at the European level, our team is coordinating several
projects on European patients’ registries for rare hematological
diseases : we are collecting patients’ data from all over Europe to
provide enough evidence for shaping European health policies and to
enable researchers to access standardized, comparable data,
ultimately aiming at providing better care to patients affected by
RHDs. In the context of the upcoming European Health Data Space
(EHDS) , which will regulate the Sharing of health data in Europe,
these projects are of strategic interest. We are therefore looking
for an experienced, motivated and committed Scientific delivery
coordinator who will work alongside the ERN scientific manager in
the effective management and delivery of the ENROL Registry and
other projects associated with Registries, mostly funded by the
European Union in the frame of the Horizon Europe Program.
Education and qualifications: Required: Bachelor's degree in
science (e.g. Biology, Pharmacy, Biomedicine). Master’s degree or
equivalent experience in public health, epidemiology or similar.
Fluent (spoken and written) English. Desired: Qualification in
Project Management tools. Experience and knowledge: Required:
Ability to communicate effectively with a variety of stakeholders.
Proficient at managing time and resources. Critical thinking and
problem-solving skills. Comfortable taking responsibilities.
Ability to work effectively with a dynamic team and to work
independently with tight deadlines. Desired: At least 2 years of
proven expertise in managing data registries (preferably related to
Biomedicine or H